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:: Volume 3, Number 4 (2-2015) ::
J Qual Res Health Sci 2015, 3(4): 305-316 Back to browse issues page
Barriers to Support for Parents of Children with Cerebral Palsy: A Qualitative Study
nasrin alaee, Farahnaz Mohammadi Shahboulaghi , Hamidreza Khankeh, Sima Mohammad Khan Kermanshahi
Assistant Professor University of Social Welfare and Rehabilitation Sciences
Abstract:   (4672 Views)
Introduction: Parents who have children with cerebral palsy are exposed to the complicated care procedures of the afflicted child. Thus, they need support in order to decrease problems in this respect. However, their needs are not sufficiently met. Therefore, this study was conducted to explore barriers to support for parents of children with cerebral palsy. Method: This qualitative study was conducted in 2011-2012 using content analysis. Purposeful sampling was used to select the participants and continued until data saturation was reached. As a result, 31 participants from among parents of children with cerebral palsy referred to the rehabilitation centers in Tehran, Iran, and experts were selected. The data were collected by in-depth semi-structured interviews and from collected documents, and were analyzed by induction method. Results: Data analysis results revealed three main categories of organizational barriers (poor institutional coordination and communication, and lack of supportive laws with administrative support), professional barriers (poor teamwork, and lack of professional competency), and family barriers. Conclusion: Through understanding parents' needs and complementing supportive laws for parents with afflicted children, coordination among supportive organizations, and planning for comprehensive care along with supportive services packages, policy makers and health services managers can help eliminate parents' problems with regard to caring for their children with cerebral palsy.
Keywords: Parents, Cerebral palsy in children, Support, Barriers, Qualitative study
Full-Text [PDF 185 kb]   (1413 Downloads)    
Type of Study: Research | Subject: Special
Received: 2014/07/14 | Accepted: 2014/11/1 | Published: 2015/02/12
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alaee N, Mohammadi Shahboulaghi F, Khankeh H, Mohammad Khan Kermanshahi S. Barriers to Support for Parents of Children with Cerebral Palsy: A Qualitative Study. J Qual Res Health Sci. 2015; 3 (4) :305-316
URL: http://jqr.kmu.ac.ir/article-1-392-en.html
Volume 3, Number 4 (2-2015) Back to browse issues page
مجله تحقیقات کیفی در علوم سلامت Journal of Qualitative Research in Health Sciences
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