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:: Volume 7, Issue 1 (6-2018) ::
J Qual Res Health Sci 2018, 7(1): 23-34 Back to browse issues page
Blind Mothers’ Experiences of Marginalization: A Hermeneutic Phenomenological Qualitative Study
Samira Shahbazzadegan , Zahra Behbodi Moghadam Dr , Shahrzad Ghiyasvandian Dr, Mahmood Shamshiri Dr, Naser Mozaffari Dr, Mohammadali Mohammadi Dr
TehranUniversity of Medical Science
Abstract:   (1949 Views)
Introduction: Mothering is a precious art with many intricacies. When women experience the phenomenon of mothering, they become vulnerable, and face many challenges. It creates worst conditions, if this experience is combined with a disability such as blindness. This study aimed to determine blind mothers’ experiences of marginalization.
Method: The approach used in this study was hermeneutic phenomenology. Sampling was carried out using targeted and snow balling method. Face-to-face interviews were conducted with nine congenitally blind mothers who had child under the age of 8 years old. The interviews were recorded and transcribed verbatim. Interviews continued until data saturation. van Manen method was used for all steps of the study including data collections, data analysis, and interpretation and reporting the findings. Data analysis was performed using MAXQDA software.
Results: From 479 initial codes, the main theme of "hermit inevitable", and subthemes of "feelings of shame", "a sense of discrimination", and "obligation in loneliness" were emerged.
Conclusion: Blind mothers’ perception of themselves was to be marginalized, and they suffered from shame feeling, discrimination, lack of support, and obligation in loneliness. Blindness affects mothering, and blind mothers are in a unique situation. 
Keywords: Mothers, Blindness, Hermeneutics, Qualitative research, Experience
Full-Text [PDF 760 kb]   (424 Downloads)    
Type of Study: Research | Subject: General
Received: 2016/09/17 | Accepted: 2016/12/31 | Published: 2018/05/24
1. Rallis S, Skouteris H, McCabe M, Milgrom J. The transition to motherhood: towards a broader understanding of perinatal distress. Women Birth 2014; 27(1): 68-71. [DOI:10.1016/j.wombi.2013.12.004]
2. Prilleltensky O. A ramp to motherhood: The Experiences of mothers with physical disabilities. Sex Disabil 2003; 21(1): 21-47. [DOI:10.1023/A:1023558808891]
3. Sharts-Hopko N. Low vision and blindness among midlife and older adults: A review of the nursing research literature. Holist Nurs Pract 2009; 23(2): 94-100. [DOI:10.1097/HNP.0b013e3181a110bb]
4. Rafaee Shirpak K. Sexual health (Family health). In: Hatami H, Razavi SM, Eftekhar Ardebili H, Majlesi F, Sayed Nozadi M, Parizadeh S, editors. Text book of public health. 3rd ed. Tehran, Iran: Arjmand Publications; 2013. p. 1590-6. [In Persian].
5. Shariat M, Ramezanzadeh F. Fertility health (Family health). In: Hatami H, Razavi SM, Eftekhar Ardebili H, Majlesi F, Sayed Nozadi M, Parizadeh S, editors. Text book of public health. 3rd ed. Tehran, Iran: Arjmand Publications; 2013. p. 1666-95. [In Persian].
6. Shackelford SL. Blind mothers' perceptions of their interactions and parenting experiences with their sighted infants and toddlers [PhD Thesis]. Austin, TX: The University of Texas at Austin; 2004.
7. Frick KD, Kymes SM, Lee PP, Matchar DB, Pezzullo ML, Rein DB, et al. The cost of visual impairment: Purposes, perspectives, and guidance. Invest Ophthalmol Vis Sci 2010; 51(4): 1801-5. [DOI:10.1167/iovs.09-4469]
8. Pascolini D, Mariotti SP. Global estimates of visual impairment: 2010. Br J Ophthalmol 2012; 96(5): 614-8. [DOI:10.1136/bjophthalmol-2011-300539]
9. Young Journalists Club (YJC). Blind and low visions suffering in Iran [Online]. [cited 2015 Nov 4]; Available from: URL: http://www.yjc.ir/fa/news/5380876/
10. Bourne RR, Jonas JB, Flaxman SR, Keeffe J, Leasher J, Naidoo K, et al. Prevalence and causes of vision loss in high-income countries and in Eastern and Central Europe: 1990-2010. Br J Ophthalmol 2014; 98(5): 629-38. [DOI:10.1136/bjophthalmol-2013-304033]
11. Ulldemolins AR, Lansingh VC, Valencia LG, Carter MJ, Eckert KA. Social inequalities in blindness and visual impairment: A review of social determinants. Indian J Ophthalmol 2012; 60(5): 368-75. [DOI:10.4103/0301-4738.100529]
12. van Manen M. Researching lived experience: human science for an action sensitive pedagogy. New York, NY: State University of New York Press; 1990.
13. Lincoln Y, Guba E. Naturalistic inquiry. 1st ed. Thousand Oaks, CA: SAGE Publications; 1985. p. 416.
14. Behboodi Moghadam Z, Ghiyasvandian S, Shahbazzadegan S, Shamshiri M. Parenting experiences of mothers who are blind in Iran: A hermeneutic phenomenological study. J Vis Impair Blind 2017; 111(2): 117-22.
15. Kent D. Beyond expectations: being blind and becoming a mother. Sex Disabil 2002; 20(1): 81-8. [DOI:10.1023/A:1015238505439]
16. Tuttle DW, Tuttle NR. Self-esteem and adjusting with blindness: The process of responding to life's demands. Springfield, IL: Charles C. Thomas; 2004. p. 328.
17. Shamshiri M, Mohammadi N, Cheraghi MA, Vehvilainen-Julkunen K, Sadeghi T. Disciplined care for disciplined patients: experience of hospitalized blind patients. Holist Nurs Pract 2013; 27(6): 344-8. [DOI:10.1097/HNP.0b013e3182a72bcd]
18. Pagliuca LMF, Baptista RS, de Franca ISX, Moreira RVO. Blind woman pregnant and ethical conflicts: A case study. International Journal of Humanities and Social Science 2012; 2(22): 171-8.
19. Mirlesse V, Dalmon C, Magny JF, Thoueille E. Pregnancy care of visual deficient women: what specificity?. Gynecol Obstet Fertil 2010; 38(2): 95-100. [In French]. [DOI:10.1016/j.gyobfe.2009.11.017]
20. Moin V, Duvdevany I, Mazor D. Sexual identity, body image and life satisfaction among women with and without physical disability. Sex Disabil 2009; 27(2): 83-95. [DOI:10.1007/s11195-009-9112-5]
21. Hankivsky O, Christoffersen A. Intersectionality and the determinants of health: A Canadian perspective. Crit Public Health 2008; 18(3): 271-83. [DOI:10.1080/09581590802294296]
22. Eye Research Centre, Farabi Eye Hospital, Tehran University of Medical Sciences. Special issue for World Sight Day 2009. Neday-e Farabi [Online]. [cited 2009 Oct]; Available from: URL:
23. Al-Shaaln FF, Bakrman MA, Ibrahim AM, Aljoudi AS. Prevalence and causes of visual impairment among Saudi adults attending primary health care centers in northern Saudi Arabia. Ann Saudi Med 2011; 31(5): 473-80. [DOI:10.4103/0256-4947.84624]
24. Al-Merjan JI, Pandova MG, Al-Ghanim M, Al-Wayel A, Al-Mutairi S. Registered blindness and low vision in Kuwait. Ophthalmic Epidemiol 2005; 12(4): 251-7. [DOI:10.1080/09286580591005813]
25. Yousafzai AK, Dlamini PJ, Groce N, Wirz S. Knowledge, personal risk and experiences of HIV/AIDS among people with disabilities in Swaziland. Int J Rehabil Res 2004; 27(3): 247-51. [DOI:10.1097/00004356-200409000-00012]
26. Shamshiri M. A Journey in to blind people's lifeworld: A phenomenological study [PhD Thesis]. Tehran, Iran: Iran University of Medical Sciences; 2013. [In Persian].
27. Sarafino EP, Smith TW. Health psychology: Biopsychosocial interactions. 8th ed. Hoboken, NJ: Wiley; 2013. p. 560.
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Shahbazzadegan S, Behbodi Moghadam Z, Ghiyasvandian S, Shamshiri M, Mozaffari N, Mohammadi M. Blind Mothers’ Experiences of Marginalization: A Hermeneutic Phenomenological Qualitative Study. J Qual Res Health Sci. 2018; 7 (1) :23-34
URL: http://jqr.kmu.ac.ir/article-1-727-en.html

Volume 7, Issue 1 (6-2018) Back to browse issues page
مجله تحقیقات کیفی در علوم سلامت Journal of Qualitative Research in Health Sciences
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